When I was asked by Lily O’Brien’s who I thought deserved a box of chocolate from them for their ‘Nominate a Friend’ campaign. Instantly I thought of my sister, Hayley. She has had a really few tough years. She has 4 kids and a step daughter. Her two eldest have both been diagnosed with ASD. But it’s her 3rd child, morgan, she has had a tough time with. Two and a half years ago he was diagnosed with a brain tumour on his brain stem. He had only just turned 2 years old at the time and it was a big shock to all of us. They said it was a stage 3 tumour and it was inoperable because of the place that it was in. Then they found another tumour on the bottom of his spine. It was heartbreaking for all of us.
When he was diagnosed she other had just given birth to her daughter a few weeks before. She was in and out of hospital with Morgan, and found it hard at first to bond with her baby, Heidi. They started around of chemotherapy on him and the effects of that were horrible. He had to learn to walk and talk again. The doctors where surprised when he did as they told her to expect the worse. But amazingly both of his tumours completely disappeared. There was over a 1 in a billion chance of this happening. But because of all the surgery’s he has had he was left with problems with his 4th ventricle in his brain.
He has had a few infections and trouble with his PEG line (feeding tube) and often get really bad headaches and he has to go back into hospital to have his shunt adjusted. After 2.5 years he was finally on the mend, and just had to go back to hospital every year for an MRI scan. But a couple months ago he had his PEG line removed and it got infected. They sorted that out but we have just found out that the infection has spread to his brain. He now has Encephalitis and he is back in hospital as I write this waiting to go down for surgery.
There is no fluid between his brain and his skull and pressure is building up. They need to operate as soon as, as it could leave him with brain damage or even worse. So fingers crossed everything goes all right for today. Then he has to have another 8 hour op a few days later to change his shunt.
So, as you can see, my sister, Hayley, really does deserves this box of chocolates. She was really glad to receive them and wondered where they had come from. They didn’t last very long as all the kids nicked some. But I’ll be buying her some more choc and flowers soon as she really does need cheering up right now.
I’ll keep you updated on Morgan’s progress on Facebook and Instagram Stories, so keep a look out.